When my water broke at 22 weeks my son was given 0% of survival, when he was born at 24 weeks and 2 days he was given a 55% chance of survial with 65% chance of long term health issued. We beat those odds.
When he was 4 days old they started scanning him for brain bleeds, they are extremely common in micro preemies, we beat those odds too and had not a single brain bleed. At 3.5 months old they told us he had ROP and needed laser eye surgery, he didn’t need glasses till 2 and it was just for near sightedness.
We started crawling, talking and walking and to everyone around him is a normal happy healthy almost 3 year old boy. We had beaten all the odds stacked against micro preemie, I have had many doctors look at him and how my sweet little Spud acts and then look at his medical history and they have a hard time believing that is the same little boy they see in front of them. We had beaten all the odds!
Or ,so I thought….
On April 20th of this year, we met with the Preemie Follow Up Clinic, these awesome groups of doctors and specialists track the progress of many many different Preemies that have gone through Stollery Hospital doors. Our appointment was from 9 am till noon, we were to meet with a psychologist, a speech and language specialist, an occupational therapist, as well as a doctor and nurse to address any long term concerns we may have, and to also chart his growth, as well as any nutritional and dietary needs he may need.
Now, I wont go into to much detail, because it is private medical information. The long short if it is, we have delays, significant delays that now require him to attend a special pre-school, at 3 years old. We fell pray to being a mom and dad, seeing all the awesome things our kid was doing but not asking questions about it.
So now, we as a family have to make a new plan, a plan to fix the delays, to give my son the best possible chance at a normal school experience when he is older. To show him how hard work and determination beat every obstacle in our paths.
We not have beat all the Preemies odds, but we can beat this. We can do this!
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Love, Hearts, and Other Pretty Things.